Since the inception of The Canadian SADS Foundation in 1995, dedicated volunteers have worked diligently to promote the Foundation's goals. The Canadian SADS Foundation is a registered Canadian charity that is committed to increasing community awareness about inherited cardiac rhythm disorders. We are proud to declare that we continue to operate solely with a staff of volunteers.
Here are some of our major accomplishments:
- The website, www.sads.ca, has become a source of links to the most current international information about inherited cardiac arrhythmia disorders. It also provides a forum for affected families to share their stories.
- A toll-free number, 1-877-525-5995, is available so that information and support to callers is available on a timely basis.
- National Conferences:
- 1999 in Toronto, ON
- 2001 in Calgary, AB
- 2003 in Toronto, ON
- 2005 in Vancouver, BC & Ottawa, ON
- 2007 in Toronto, ON
- 2008 in London, ON and in Calgary, AB
- 2009 in Montreal, QC and in Winnipeg, MB
- Periodic Newsletters in a newsy format that includes:
- Articles contributed by leading medical personnel
- Family Stories
- Fundraising Events
- Brochures available in French as well as English.
- General information brochures French or English
- Brochures for Teachers and Coaches French or English
- Brochures for the Health Care Community - French or English
- Patient Information Booklets:
- Current information for patients and families affected by LQTS
- Current information for patients and families affected by ARVC
- Ongoing Recognition and Support from leading Canadian electrophysiologists, pathologists, medical examiners and coroners, and other members of the medical community.
- International collaboration with other "SADS" groups eg: USA, UK , Australia and Europe has resulted in global recognition for the contribution that the "SADS" groups have made towards promoting awareness for "The Warning Signs" of inherited cardiac rhythm disorders.
- A Canadian Data Base: The Canadian SADS Foundation manages a central data base of Canadian families affected by inherited cardiac rhythm disorders and/or families who have a history of sudden unexplained death of an otherwise healthy young family member. Our mailing list is now over 1,500 and continues to grow.
- A varied and knowledgeable Board of Directors and Medical Advisory Board which guide and provide advice on the overall direction of the Foundation. All members of each Board have a personal involvement in inherited cardiac rhythm disorders.
- A growing list of generous supporters whose contributions make all of these accomplishments possible..