1 in 500
Living with HCM
1 in 2500
Born with Long QT Syndrome
600
Canadians under age 35 die annually
50%
Of sudden deaths reported pre-event warning signs
SADS Warning Signs
Fainting (syncope) or seizure during physical activity.
Fainting (syncope) or seizure resulting from emotional excitement, emotional distress, or startle.
Family history of unexpected sudden death during physical activity or during a seizure, or any other unexplained sudden death of an otherwise healthy young person.
Information for Patients & Their Families
Please check out our many publications, articles, and links to credible and helpful websites.
Information for Coaches & Teachers
Help save a life. Learn more about the symptoms for inherited cardiac rhythm disorders.
Information for The Healthcare Community
SADS refers to a variety of cardiac rhythm disorders which are often genetic and can be responsible for sudden death in young, apparently healthy people.
Featured Publications
LQTS: An Information Booklet for Patients and Their Families
This booklet has been written in an easy to read, patient friendly format and provides excellent information for those diagnosed with LQTS.
Long QT Syndrome in Women
As a woman with LQTS, your risk of experiencing symptoms may change at different stages of your life. Please read further…
Cardiac Channelopathies: An Information Booklet for Patients and Their Families
This publication is an excellent summary of several cardiac channelopathies including LQTS, CPVT and others.
Latest News
Learn CPR this National Heart Month
Cardiopulmonary resuscitation (CPR) is a critical skill that can save lives. According to...
Introducing Let’s Talk SADS Live
The Canadian SADS Foundation is pleased to announce that in January 2023 we will be introducing...
Christian Eriksen Return to Play PR
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Arena defibrillator saves hockey player’s life
The quick thinking of teammates – and ready access to an automated external defibrillator (AED) – saved the life of a 59-year-old man earlier this month.
Family Tree May Aid Treatment of Inherited Heart Disorders
Researchers who used family trees dating back to 1811 to estimate the death risk for people with inherited heart rhythm disorders say their findings can help doctors determine when to screen and treat today’s patients with these disorders.