Vincent’s Story

Vincent’s Story

Life and Other Fatal Conditions: My Story Time is a funny thing. It’s everything but yet we treat it like it’s of little value. With it we are alive, we exist, we love, we chase our dreams and we find our success if everything works as we intended. Now...
Kristina’s Story

Kristina’s Story

Kristina is a personal trainer, cycling coach, and former competitive endurance athlete whose entire life was turned upside down when, at the age of 40, she was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). In 2015, Kristina was suffering from...
The Guthrie’s Story

The Guthrie’s Story

When our first child was born in November, 1998 no one knew that Long QT Syndrome [LQTS] existed in our family. Although through unfortunate circumstances, a diagnosis was thankfully made approximately six months later. My history with LQTS began in the mid 1960s, at...
Steve’s Story

Steve’s Story

In the early hours of Thursday 9th March 2017, my younger brother Danny, passed away in his sleep from an undiagnosed heart condition called Brugada syndrome. He was just 25 years old. I was only 13 months old when Danny was born, so I never remembered a day in my...
Jennette’s Story

Jennette’s Story

Jennette experienced Sudden Cardiac Arrest (SCA) in December of 2022 while having the flu. She survived – and in hospital was diagnosed with Brugada Syndrome. “The cardiac arrest and heart disease diagnosis was a huge shock on me and my family. I’m grateful to be...