In the fall of 1994, Andrea Jones-Pascoe’s life was saved after Pam Husband went public withher story about the tragic loss of her son Greg. This courageous act led to Andrea’s diagnosis ofLong QT Syndrome (LQTS) following a series of fainting spells and...
When our first child was born in November, 1998 no one knew that Long QT Syndrome [LQTS] existed in our family. Although through unfortunate circumstances, a diagnosis was thankfully made approximately six months later. My history with LQTS began in the mid 1960s, at...
Jennette experienced Sudden Cardiac Arrest (SCA) in December of 2022 while having the flu. She survived – and in hospital was diagnosed with Brugada Syndrome. “The cardiac arrest and heart disease diagnosis was a huge shock on me and my family. I’m grateful to be...
Kristina is a personal trainer, cycling coach, and former competitive endurance athlete whose entire life was turned upside down when, at the age of 40, she was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). In 2015, Kristina was suffering from...
The Kowalsky family’s medical journey began innocuously. When young Atley Kowalsky started displaying consistent nighttime coughing, his parents, Adam and Susan, like any concerned caregivers, sought medical advice. Initial suspicions pointed to asthma. However,...
Meet Mike, a symbol of courage in the face of adversity. Now 36, Mike’s life took a sudden turn at the age of 25 when he was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). A condition that would bring challenges, but also a resilience...
