News

Andrea’s story

Andrea’s story

In the fall of 1994, Andrea Jones-Pascoe's life was saved after Pam Husband went public withher story about the tragic loss of her son Greg. This courageous act led to Andrea's diagnosis ofLong QT Syndrome (LQTS) following a series of fainting spells and two near drownings. At theage of 11, Andrea...

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Tyson’s Story

Tyson’s Story

  I wrote this about my nephew the day after his celebration of life. It was the first day of life without him. We said our goodbyes, had our tears, and drowned in our grief. Love and support filled Tyson’s life, despite it being cut short. His life was good, a set of supportive parents that...

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Chris’ Story

Chris’ Story

My nephew, Chris Clarke, at the age of 30, was the epitome of health, but despite this, he passed away suddenly on April 23, 2008.   EHS paramedics tried many times to restart his heart, but sadly it was not to be and he slipped away with his Mom, Dad, and sister by his side. The medical examiner...

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The Guthrie’s Story

The Guthrie’s Story

When our first child was born in November, 1998 no one knew that Long QT Syndrome [LQTS] existed in our family. Although through unfortunate circumstances, a diagnosis was thankfully made approximately six months later. My history with LQTS began in the mid 1960s, at the age of 6. Between then and...

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Jennette’s Story

Jennette’s Story

Jennette experienced Sudden Cardiac Arrest (SCA) in December of 2022 while having the flu. She survived – and in hospital was diagnosed with Brugada Syndrome. “The cardiac arrest and heart disease diagnosis was a huge shock on me and my family. I’m grateful to be alive!” she says. “Calling 911,...

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Kristina’s Story

Kristina’s Story

Kristina is a personal trainer, cycling coach, and former competitive endurance athlete whose entire life was turned upside down when, at the age of 40, she was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). In 2015, Kristina was suffering from near-fainting episodes during...

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