History, Vision, Mission, and Goals
History of the Foundation
The Canadian SADS Foundation envisions a day when:
- More young people with an unknown inherited cardiac rhythm disorder will be diagnosed correctly which will more likely ensure they receive early and effective medical treatment;
- Universal knowledge of “The Warning Signs” will prevent hundreds of unnecessary deaths each year from an unknown inherited cardiac rhythm disorder;
- The Foundation will continue to be viewed as a unique and respected Canadian patient advocacy group and be recognized as the Canadian source for patient support and information about inherited cardiac rhythm disorders.
The Canadian SADS Foundation is committed to saving the lives of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities, and providing a wide-range of programs and support to these families.
The Foundation’s programs also focus on promoting awareness of the “The Warning Signs” for inherited cardiac rhythm disorders, which are:
- Fainting (syncope) or seizure during physical activity;
- Fainting (syncope) or seizure resulting from emotional excitement, emotional distress, or startle;
- A family history of unexpected sudden death during physical activity or during a seizure, or any other unexplained sudden death of an otherwise healthy young person.
The Core Values of the Canadian SADS Foundation include:
- Remaining available and responsive to the needs and expectations of the patients and families we serve;
- Conducting our affairs in a manner that fosters an image of professionalism and ethical regard for the roles of all those who work towards preventing sudden cardiac death in children, youth and young adults;
- Continuing to work collaboratively with all stakeholders: affected families, physicians, researchers, and affiliated support groups to achieve our goals to prevent sudden cardiac death in children, youth and young adults.
Goals of the Foundation
The Canadian SADS Foundation is committed to delivering three core services:
Patient and family support for all those who are affected by inherited cardiac rhythm
Education and awareness of “The Warning Signs” for these disorders among health care
professionals and others who care for and work with children and young adults;
Advocacy to encourage research with the objective of improving diagnosis and treatment
for these disorders.