Mike’s Story

Oct 19, 2023 | Patients and Families

Meet Mike, a symbol of courage in the face of adversity. Now 36, Mike’s life took a sudden turn at the age of 25 when he was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). A condition that would bring challenges, but also a resilience that is truly commendable.

Prior to his diagnosis, Mike had experienced episodes of fainting and cardiac arrest. It was around this time that his family was also uncovering their predisposition to ARVC through genetic testing. For Mike, this revelation came at an opportune moment, allowing for a swift diagnosis and immediate implantation of an ICD, a life-saving measure.

With Mike serving in the Canadian Forces, the realities of ARVC meant that overseas missions carried significant risks. Nonetheless, Mike’s unwavering commitment to national service saw him transition to a civilian role within national defence, allowing him to continue serving his country in a new capacity.

Family plays a central role in Mike’s journey with ARVC. He’s a proud father of two children. His son, at 15, carries the gene mutation for ARVC but, thankfully, has yet to show any symptoms. His daughter tested negative for the condition. ARVC’s presence is felt within Mike’s extended family as well, with several relatives managing life with the condition.

Yet, beyond the physical ramifications of ARVC, Mike shines a light on an often-overlooked aspect – the mental toll. “Being told at a young age that you can’t do certain things is challenging,” he shares. The mental aspect of coming to terms with such restrictions has been one of his toughest battles.

Being told at a young age that you can’t do certain things is challenging

Mike’s narrative is one of perseverance and adaptation. It underscores the profound impact that such conditions can have on one’s mental well-being, just as much, if not more than the physical. It highlights the need for understanding and addressing both the physical and mental aspects of living with conditions like ARVC.